FRAXA Research Foundation - working towards a cure for Fragile X

FRAXA Research Foundation - working towards a cure for Fragile X

About the FRAXA Research Foundation - working towards a cure for Fragile X Group

FRAXA is a parent-led grassroots nonprofit organization which raises funds to support research aimed at finding effective treatments and a cure for Fragile X, the most... more »
FRAXA is a parent-led grassroots nonprofit organization which raises funds to support research aimed at finding effective treatments and a cure for Fragile X, the most common inherited cause of intellectual disabilities and autism. FRAXA directly funds biomedical research at universities worldwide. « less

Have something to say?

Join LinkedIn for free to participate in the conversation. When you join, you can comment and post your own discussions.

Join LinkedIn

Most Popular Discussions

Saša Z.

Saša

NIMH study reverses Fragile X and autism in mice. Great quote from Dr. Thomas Insel, NIMH director, on biomedical treatments for FX and...

Autism-like behaviors in mice have been reduced, using an experimental agent being tested in patients for a related disorder.

posted 1 month ago

Debbie S. 19 days ago • Edit • Debbie likes this. »
See more »
Katie C.

Katie

The John Merck Fund offers research awards (up to 4 years at $250,000 annually!) for Fragile X and Downs research. Preliminary proposal...

The John Merck Fund has had a longstanding interest in people with intellectual and developmental disorders. Starting in 2012, JMF will launch the Developmental Disabilities Translational Research...

posted 1 month ago

Saša Z. 1 month ago • Edit • Saša likes this. »
See more »
Katie C.

Katie

FRAXA 2012 Fragile X Research Awards $1,130,423 in university-based Program Grants and Postdoctoral Fellowships

posted 1 month ago

Aditi B. 1 month ago • Edit • Aditi likes this. »
See more »
Saša Z.

Saša

A great overview of the Fragile X drug pipeline (requires subscription/free trial), from the business perspective.

EP Vantage - fragile x epvantage.com

posted 2 months ago

Katie C. 2 months ago • Edit • Katie likes this. »
See more »
Jose R.

Jose

New LinkedIn group on behavior phenotypes

New site devoted exclusive to behavior phenotypes such as Fragile X. Look for "Behavior phenotypes" in groups.

posted 3 months ago

Jose R. 3 months ago • Edit • Thank you for the reference. I am currently compiling a list of selected references on behavior phenotypes to be published on the Association of ... »
See more »
Ira C. Jose R.
Saša Z.

Saša

From Novartis' web site: AFQ056 for Fragile X is scheduled for filing in...

novartis.is

posted March 16, 2011

Debbie S. 4 months ago • Edit • That's ok -- we'll happily wait until it's available! »
See all 3 comments »
Mike T. Katie C. Debbie S.
Katie C.

Katie

FRAXA Update: Treatment Trials and the Next Wave of New Drugs

2012 promises to be a watershed year: the landscape may be very different by this time next year!

posted 4 months ago

Saša Z. 4 months ago • Edit • Saša likes this. »
See more »
Saša Z.

Saša

A wonderful story...

In 1990, we learned the awful truth: My two nephews had a form of autism caused by a then newly discovered disorder called Fragile X syndrome, which would keep them both in a state of suspended toddlerhood until they were old...

posted 11 months ago

Nkosinathi B. 6 months ago • Edit • Nkosinathi likes this. »
See more »
Saša Z.

Saša

Congratulations to Dr. Elizabeth Berry-Kravis!. She is the recipient of the 2011 FRAXA Champion Award, which was presented to her at the...

posted 8 months ago

Nkosinathi B. 6 months ago • Edit • Nkosinathi likes this. »
See more »
Katie C.

Katie

FRAXA Update newsbriefs

- Investigators Meeting report
- new knockout rat models for fragile X, Rett syndrome, and autism
- Gordon conference on Fragile X and ...

posted 7 months ago

Saša Z. 7 months ago • Edit • Great stuff! »
See more »
Nick R. Saša Z.
Saša Z.

Saša

Congratulations to Dr. Mark Bear and Dr. Emily Osterweil for their Pioneer Awards, which were awarded to them at the FRAXA 2011...

posted 8 months ago

Debbie S. 8 months ago • Edit • Debbie likes this. »
See more »
Saša Z.

Saša

Jim Cantore--on storms and Fragile X in USA Today

The Weather Channel meteorologist has no plans to take cover yet.

posted 9 months ago

Merima K. 8 months ago • Edit • Merima likes this. »
See more »
Saša Z.

Saša

Seaside is starting Phase III trials of Arbaclofen (STX209)

posted June 2, 2011

Paul K. 11 months ago • Edit • Sasa, thank you for keeping us all up on everything related to FRAXA. ... »
See more »
Paul K.
Saša Z.

Saša

Mark Bear in front of US Congress: a video. Take a look at this 30 minute video about progress towards a cure for Fragile X, put forth so...

Do note his mention of FRAXA at the very end--as a small and very effective organization fighting for a cure.

posted 12 months ago

Katie C. 11 months ago • Edit • Here's a link to the video: http://youtu.be/vsbB7D__-aA »
See all 3 comments »
Sara Jane W. Sergei D. Katie C.
Saša Z.

Saša

Steve Warren, co-discoverer of the Fragile X gene, elected to the National Academy of Sciences!

Stephen T. Warren, PhD, William Patterson Timmie Professor and chair, Department of Human Genetics, Emory University School of Medicine, has been elected a member of the National Academy of Sciences (NAS) for his excellence in...

posted May 3, 2011

Katie C. May 17, 2011 • Edit • Katie likes this. »
See more »
Ira C.
Saša Z.

Saša

A number of clinical trials ongoing for Fragile X

http://www.clinicaltrials.gov/ct2/results?term=fragile+x

posted April 22, 2011

Ira C. April 22, 2011 • Edit • Ira likes this. »
See more »
Katie C.

Katie

FRAXA Research Foundation - working towards a cure for Fragile X is now an open group

I am pleased to announce that, as the owner of this group, I have just switched us to an open discussion group. All future discussions ...

posted January 8, 2011

Edit • »
See more »
Saša Z.

Saša

FRAXA deadline for 2011 grant submissions is tomorrow, February 1st. Fragile X research has never been as exciting--and as promising--as...

posted February 1, 2011

Edit • »
See more »

About this Group

  • Created: May 2, 2008
  • Type: Nonprofit Group
  • Members: 161
Ad

Group Statistics

CHECK OUT INSIGHTFUL STATISTICS ON THIS GROUP

  1. Director
  2. Manager
  3. Entry
MEMBERS
3,759
View Group Statistics »