The Myotonic Dystrophy Foundation (MDF) is a patient advocacy organization dedicated to leading and mobilizing resources toward effective management, treatment and ultimately a cure for myotonic dystrophy. The foundation provides invaluable medical information, empowering families and medical providers as they navigate the disease process. The website, http://www.myotonic.org, and medical information provided by the foundation, is approved by members of the MDF Medical and Scientific Advisory Committee, comprised of American experts in the field of myotonic dystrophy and muscle research who together have devoted more than ninety years to the research and treatment of myotonic dystrophy. In addition, the MDF has a community website where families and caregivers meet others living with similar challenges and share information.
Specialties
"Fund medical research", "support groups", "medical education", advocacy
